Where does Big Pharma find Big Numbers of sick customers?

(Paywall-free popularization like this is what I do for a living. To support me, see the end of this post)

Easy: in the same places where YOU find lots of “friends”.

Where does Big Pharma find Big Numbers of sick customers? /img/big-pharma-meme.jpg
... and we do not use social media

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Facebook, or any other ad-driven social network of course, can help drug companies to target only the users most likely to need the specific drugs they want to sell.

And it can do it with high accuracy. Not enough to get sued, but high enough to be troubling, as this report shows. Here is how high, to prove why you should read the full article for details:

  • the authors found dozens of ads for prescription pharmaceuticals targeted at people with “interests” in topics like “bourbon” or “oxygen”
  • more specifically, “awareness” of diseases like ovarian cancer, multiple sclerosis, bipolar depression, chronic bronchitis and many more… was +“a frequent proxy for illness in targeting decisions made by advertisers”_
  • in 2019, researchers were able to predict whether a Facebook user had any of 21 health conditions through language in status updates alone

Why this is troubling? Easy

All this is bad and troubling in many ways. Some are really easy to avoid, unless one is really clueless of course:

“If a work colleague walks by your computer screen and sees a targeted ad for a lung cancer drug, for example, he or she could deduce you have the condition."

The really troubling part is that these practices are nothing else but ” targeting and exploiting people who are in this vulnerable state and who have found real benefit from online patient communities".

And it is even more troubling when one remembers how often those vulnerable people are made even more vulnerable not by their own fragility, but by their own “FRIENDS”.

Who writes this, why, and how to help

I am Marco Fioretti, tech writer and aspiring polymath doing human-digital research and popularization.
I do it because YOUR civil rights and the quality of YOUR life depend every year more on how software is used AROUND you.

To this end, I have already shared more than a million words on this blog, without any paywall or user tracking, and am sharing the next million through a newsletter, also without any paywall.

The more direct support I get, the more I can continue to inform for free parents, teachers, decision makers, and everybody else who should know more stuff like this. You can support me with paid subscriptions to my newsletter, donations via PayPal (mfioretti@nexaima.net) or LiberaPay, or in any of the other ways listed here.THANKS for your support!